"Chilling tales of home-care crisis call for action", "System leaves woman 'a prisoner' in her home", "Improving care and saving money; Streamlining treatment for home-care visits is cheaper and more humane, officials say", "Home care agency millions in deficit".
These are just some of the recent headlines found in newspapers big and small across Ontario everyday. They point to an unmistakable, open, and now acknowledged sense of crisis in home health care in the province that shows little sign of letting up.
The Community Care Access Centre (CCAC) is to home care what the Local Health Integrated Network is to hospitals; both are creations of government; both were meant to usher in a new way of doing things in health care in the province. The CCACs are the decision making body - and resource allocator - for who gets acute home health care in Ontario. This is part of a conscious decision on the part of the McGuinty Liberals to move care out of cash-strapped hospitals into the community, where many people feel more comfortable and supported.
But scores of families with loved-ones in need of acute home health care are saying the current system isn't working.
The province has offloaded much of community health care onto a collection of for-profit providers such as Bayshore Health. Patients are then told which of these companies they will have to rely on based on geography and areas of specialization - or which of these companies was able to successfully bid for a region's health care dollars.
Patients, who are often elderly and infirm, very sick children, or even terminally ill have little recourse if they are dissatisfied with the level of care. Even when that care proves inadequate there is little incentive for the provider to find a solution.
The mother of a boy with a rare degenerative disorder who requires round-the-clock care told SEIU.ca she has had to become "a nuisance" trying to get her son adequate care from a provider that is well compensated by the province.
"They get $100,000 from the province," she says, even though her boy's needs often go unmet.
Is there another option for her sick boy? "No," she says. A bed in the local hospitals ICU would cost the province 1.3 million dollars for 5 months and would split up mother and child. "We make things work because there's no other choice," says the mom.